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Extract from the LUPUS UK web site at:

Lupus Study

The Physician - Lupus Patient Relationship Survey

The purpose of this study is to investigate the relationship between Lupus (Systemic Lupus Erythematosus) patients and their physicians. In particular, the researchers are interested in how individuals' general experience of relationships relates to their relationship with their physician. Additional focal points include how this medical relationship relates to issues such as how healthy patients feel, their satisfaction with treatment, and their adherence to treatment. It is hoped that the results of this study will reveal information that will assist not only lupus patients, but all medical patients in getting the critical care and attention they deserve from their medical provider.

Criteria for patient eligibility include:

  • (a) Being between the ages of 21 and 60
  • (b) Receiving a diagnosis of Systemic Lupus Erythematosus (SLE) at least 3 years ago
  • (c) Having seen the same physician three times in the last year
  • (d) Willingness to respond to survey questions regarding adherence to their treatment regimen, overall satisfaction with treatment, their own health-related quality of life, their relationship with their physician, and other close relationships in their life.

Participation should take under 30 minutes and involves completing a survey over the internet or by mail. All information will be confidential. A donation of $1 will be given to a Lupus foundation for every individual who participates.

To participate, please visit this link.